Saturday, February 5, 2011

Working with Andres: Physical

When I left the hospital with Andres, all the hospital gave me was a small pamphlet about nursing and children with Down Syndrome.  Andres did not have any problems nursing so I put this away.  I went to see the pediatrician the day after we got home and he gave me a list of resources.

1.  Children's Medical Center Down Syndrome Clinic

2. The Down Syndrome Guild

3. Texas Early Child Intervention Services (ECI).

I immediately started calling.  The DS Clinic gave us a ONE YEAR appointment.  They only see children one day a week and each appointment is three hours so we got an appointment a year out.  This was not help but we got on the list.

The Guild sent us a book and a large 3 ring binder.  VERY helpful!

ECI is a statewide program for families with children, birth to three, with disabilities and developmental delays. ECI supports families to help their children reach their potential through developmental services.  Services are provided by a variety of local agencies and organizations across Texas.  ECI came to our home for an evaluation and quickly got us working on educating us and begin physical therapy.  

An article on Physical Therapy for children with Down Syndrome.
The Goal and Opportunity of Physical Therapy for Children with Down Syndrome

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