Tuesday, March 22, 2011

World Down Syndrome Awareness Day

March 21, 2011 marks the 6th anniversary of World Down Syndrome Day and each year the voice of people with Down syndrome, and those who live and work with them, grows louder as we celebrate the abilities, talents and accomplishments of people with Down syndrome.

Almost one year ago my life changed.  3-30-10, not the birth of my son but the day after, the day we were told he was born with an extra Chromosome, number 21, called Down syndrome.   A moment in my life that I will never forget.   A moment that I cannot fullly describe but the word fear and grief come to mind.  I feared how he would be treated by this cruel world and I grieved my baby. 

On this day of awareness I want you to know that my son is amazing, he is so sweet and brings so much joy to our lives.  I want you to know that not a day goes by that I don't think about a milestone, am I doing enough, and what will he do or not do.  I want you to know that I don't want you to feel sorry for me because I feel lucky, blessed and proud.  Know that if you have questions do not be afraid to ask.  I love to talk about my son and do not mind talking about Down syndrome.  And from what I read, many parents of children with Down syndrome feel the same.

My life is filled with purpose and joy! 

Such a Big Boy!

He LOVES water!  
With Daddy a week ago, in need of a haircut!  How he LOVES his daddy!
And the hair cut!  Haircut number 5 and not even one years old yet :-)!!!



Jamming!  Look at that beautiful posture! 

10 comments:

Vida Mía said...

He is the cutest little boy I've ever seen... you are right, nobody has to feel sorry for parents with Down kids because they are a wonderful gift from above, I believe every parent "gets" the child they need, sometime to learn a lesson, sometimes just to show that happiness is beyond "perfection"

Susana of Montessori Candy said...

Hi Gigi!
I heard the most beautiful story on Open Line with Barbara Mcwiggen yesterday. A lady called in to talk about what a blessing her sister with DS had been in her life and those around her as well. I was in tears!!! Maybe youf can find it archived online, it was truly beautiful. I can't believe Andres has already had 5 haircuts! How cute! :)

Churumbea said...

Gracias por compartir lo que haces con tus chicos.
Te he dejado un premio en mi blog
Thanks for sharing what you do with your kids.
I've left an award on my blog
http://churumbea.blogspot.com/2011/04/gracias-por-los-premios.html

Annicles said...

Hi Gigi,
I love your blog and gave you an award. Come over and visit to pick it up!

Miami eye doctors said...

You are a happy family, this I can see from these photos and I'm glad that you are so optimistic and positive thinking and you don't give up, people having the same problem should learn from you and follow your example.

Deb Chitwood said...

Your son is absolutely adorable! I started my eduational career in special education and worked with lots of Down syndrome children and adults - and they added so much beauty and joy to my life! I hope you and your family have a very blessed Easter! Deb @ LivingMontessoriNow.com

Leptir said...

Happy Easter :-)

Leptir said...

Adorable blog award is waiting for you :-)
You can check it out here:
http://leptir-mojpribor.blogspot.com/2011/04/new-award-adorable-blog.html

Tati said...

He is so adorable!

Olives and Pickles said...

He is so so cute!!I haven't heard from you for a while..Hope everything is doing good!
Patty